Living with a rare disease means managing unique challenges, including frequent doctor visits, rigorous treatment regimens and hospitalizations, and exposure risks. While quality and duration of life continues to improve thanks to improved diagnosis and treatment approaches, individuals living with rare diseases still face disparities in achieving traditional life milestones.

That’s why the EveryLife Foundation for Rare Diseases established the #RAREis Scholarship Fund – to enrich the lives of adults living with rare diseases by providing support for their educational pursuits.

Award: One-time scholarship awards of $5,000 each will be granted to up to 53 recipients for the Fall 2022 semester

Deadline: April 22, 2022

Criteria:

  • Applicant must be over the age of 17
  • Applicant must be a resident of the United States
  • Applicant must be diagnosed by a physician as having any form of rare disease regardless of treatment status. A disease is defined as rare when it affects fewer than 200,000 people in the United States.
  • Applicant must be planning to enroll full-time or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational-technical/trade school for the Fall 2022 semester. There is no minimum amount of credit hours to be part-time

How do I apply?

  • Visit rarescholarship.org and click ‘apply now’ at the top
  • You will be taken to Scholarship America’s application portal. Enter your information
  • Answer the 1-page essay question about your rare disease journey and career
  • Upload documents: your most recent transcript and Diagnosis Verification Form
  • Review & submit your application by April 22, 2022 at 2:00 PM ET

For more information regarding this scholarship, please visit:

Scholarship for Rare Diseases – EveryLife Foundation for Rare Diseases